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The TTTS Appeal. Twin to Twin Transfusion Syndrome



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Every week we hear from families about the devastating impact of Twin to Twin Transfusion Syndrome (TTTS).  That’s why we are helping to lead the fight to ensure a better understanding of how best to treat these vulnerable babies. Join us in the fight against TTTS as we try to help save babies lives.

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Read the TTTS blog
A big thank you to Jayne Cobbing for running the marathon for the TTTS Appeal

Jayne Cobbing ran the marathon at the weekend for the Tamba TTTS Appeal. Jayne has raised a whopping £3,000 for the appeal - thank you so much and well done!!

For more information on Jayne's story, please visit her Virgin Giving page




Feeling inspired after reading Jayne's story? The London Marathon ballot opens next week - why not take part and raise funds for Tamba? 


TTTS appeal

29 April 2015 13:04:00

Telford Twins or More Club support Tamba's TTTS appeal

On Tuesday March 17, Tamba travelled up to Telford to join the local twins and multiples club for a special fundraising event. The Telford Twins or More were holding an indoor and outdoor puddle jump to help raise awareness of Tamba's TTTS appeal. 

Families from the club came along and the kids lined up to take the puddle challenge, by splashing their way through a row of specially designed outdoor ‘puddle trays.' They were were joined by the local paper, the Shropshire Star, which published a lovely article about the event. 

Once everyone had dried off, club members headed inside to warm up with some puddle themed dancing, led by Diddi Dance, and tuck into some delicious morning tea. Then it was time for a raffle, where mums and kids had a chance to win some great prizes. Sarah Thompson, from the Telford Twins or More Group said, "we decided to hold our event to try and help Tamba raise awareness of this sometimes devastating syndrome and hopefully raise a few pennies whilst having lots of fun."

"We also decided to pick a day during half term holiday so lots of our young school age multiples can come along and have a splashing good time."

Tamba would like to thank the Telford Twins or More Club for organising such an amazing day and for supporting our TTTS appeal. 

You can view more photos from the day on Tamba's Facebook page.

If you are interested in organising an event for Tamba's TTTS appeal, or if you would like to find out how your club can get involved, email rebeccageorge@tamba.org.uk

01 March 2015 12:18:00

MP Sir Gerald Howarth takes the Tamba #puddlechallenge

Last Friday, we had a special visitor to the Tamba offices when local MP for Aldershot, Sir Gerald Howarth, paid us a visit and took the TTTS #puddlechallenge. About 20 local families braved the cold to join him, and make a splash to help raise awareness of our TTTS appeal.

Tamba holds a special significance for Sir Gerald Howarth, who is a grandfather to twin boys Ned and Wilfred.

“They (Tamba) provide much needed support for parents of twins and multiples. During her pregnancy with twins, my own daughter found their resources to be very helpful and reassuring,” Sir Gerald said.

“I strongly support their TTTS campaign which I hope will raise much needed awareness of this relatively unknown condition and will help save lives in the future.”

Sir Gerald’s puddle jump was covered by the Eagle Radio, who spoke to local mum Carol Flack, and appeared in The Aldershot News and Mail

Tamba CEO Keith Reed said he wanted to thank all the families who joined us on the day.

“It was a great success, and events like these help us to raise awareness of TTTS, which is a rare, though potentially devastating condition,” Mr Reed said.

Tamba is currently raising funds to create the UK’s first ever registry which will monitor all TTTS pregnancies and their outcomes. You can support Tamba’s TTTS appeal by taking the puddle challenge.

Here’s how it works…

1. Grab your wellies and your camera or phone

2. Find a puddle (the muddier the better) and take a picture or video of yourself and/or your family jumping in and making a splash for the TTTS appeal.

3. Post the photo on your social media with the #puddlechallenge. You can also tag us @tamba_twins_mb. If social media is not your thing, but you would still like to be involved, simply email your photo to rebeccageorge@tamba.org.uk.

4. Donate to the TTTS Appeal by texting Jump02 £5 to 70070.

5. If you have friends who you think might be interested in taking the challenge, why not nominate them? Simply tag them on Facebook or social media, or nominate them in your puddle jumping video. 

If you are interested in organising a group puddle jump or another event to raise money for Tamba’s TTTS appeal, please email rebeccageorge@tamba.org.uk.

01 March 2015 10:14:00

How will the TTTS registry change clinical practice?

Dr Asma Khalil, who is leading the project from St George’s Hospital, explains how the TTTS registry will change future clinical practice for TTTS patients.  ‘The registry will help to build a true picture of TTTS cases in the UK. Crucially, a UK registry will provide a tool to improve clinical practice and therefore provide better patient care. It will also establish a platform to allow longer term follow up of TTTS survivors showing the neurodevelopment outcomes. The data will also be invaluable for future ongoing research into TTTS, for example the consequences of individual treatments. Eventually we would try to replicate this model internationally.'

28 November 2014 09:26:00

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