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Louise’s Story

“Last year we received the wonderful news that we were expecting identical twin girls.  After the initial shock subsided, we began preparing ourselves for life with two little ones.  We were told there were several serious risks with this kind of pregnancy, so over the following months we had regular scans and consultant appointments.  Our babies were growing well, so we tried to stay positive.

At our 28 week scan, we were told that they suspected our girls were suffering from TTTS – Twin to Twin Transfusion Syndrome.  We were referred to St Mary’s in Manchester to meet with a specialist the following week.  TTTS at this stage in a pregnancy is quite unusual – we had passed the high risk stages.  We prepared ourselves for the possibility that we would be meeting our beautiful babies much sooner than expected!

Two days later, at 29 weeks pregnant, I went into hospital to be monitored as I had felt limited movement.  That day we received the devastating news that we had lost one of our little girls.  As a result, they were concerned that our surviving twin may have suffered severe brain damage.  Five weeks later we met with a specialist at the Royal Hallamshire Hospital in Sheffield for an MRI scan of our little one’s brain. The following day we received the incredible news that she appeared healthy, with no signs of serious damage.

We planned to continue with the pregnancy until 36 weeks and had arranged an elective caesarean.  However, Evie and her sister Luna were delivered via emergency c-section at Macclesfield General Hospital 6 days earlier than we were expecting.  We have given Evie the middle name Luna, so that her sister will forever be a part of her life.

Throughout this entire experience the charity, Tamba has been a huge source of support.  Multiple pregnancies are becoming more and more common, but there has been limited research into them, including situations like ours.  Although TTTS was suspected shortly before Luna passed away, this has since been questioned.  Having carried Luna for a further 6 weeks, a post-mortem into her death would not return any answers as to what took her from us. We will sadly never know why we lost our daughter.  Evie will never know her sister.

Many of the areas being investigated by Tamba’s Big Research Appeal relate directly to experiences that we have had.  The outcomes of the research could help families like ours in the future and possibly even prevent others from having to experience the devastating loss that we have.”

 

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