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Saving lives, supporting families

My story- Paul Maber

Paul cycled the Black Mountains to raise money for research into Twin to Twin Transfusion Syndrome. 

It seems like only yesterday that my daughters were diagnosed with Twin to Twin Transfusion Syndrome. My wife Heather, had to undergo Laser surgery to ensure their survival; the weeks of uncertainty that followed and that, on the 28th January 2010 Charlotte and Gabrielle were born, 11 weeks to the day premature, weighing a hefty 2 lb 2.5 oz and 2 lb 1 oz. 

During their 10 weeks as inmates at the Royal Glamorgan Special Care Baby Unit, they underwent many trials and tribulations, often taking several steps forward and then several steps back.  They had infections to contend with, needles and tubes, ultroviolet light, intubation - the works.  I hope I'm old and grey before I have to contend with what my daughters have had to deal with in the last 12 months.

Since the girls came home, our little celebrities are the talk of the town, and myself and my wife are often stopped and asked how they are doing.  In answer, brilliantly.  They appear to have none of the side affects often a result of TTTS and they are bright as buttons and growing. 

The problem is that in Wales (and it's quite a big place), I believe that we still don't have a centre for Laser treatment to treat TTTS, so I cycled the Black Mountains  (again!) to try and raise awareness through TAMBA of this fact. 

The Tour of the Black Mountains, is simply BRUTAL.  Some would say I have suffered enough having been through TTTS, but I disagree.  Nothing can compete with what our girls went through during their first few weeks of life.

If you would like to take part in this event, contact luciewigley@tamba.org.uk.


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