Tamba logo - Twins and Multiple Births Association

Saving lives, supporting families

Find out more about our current appeals

What is Research Rocks?

It's our latest fundraising appeal to pay for research to save babies' lives.

News of the record-breaking drop in twin stillbirths and neonatal deaths means we are doing something right. A report by Mothers and Babies: Reducing Risk through Audits and Confidential Enquiries across the UK (MBRACCE-UK) on 15th June showed that between 2014 and 2016:

  • Neonatal deaths in twins fell by one third
  • Twin stillbirths fell by almost half – the fastest drop in stillbirths in any population since records began
  • Meaning 305 babies’ lives saved!

 

We are super excited about this and very proud Tamba’s strategic aim ‘to cut poor outcomes in multiple pregnancies’ was achieved by design, not accident – a combination of targeted campaigning, educating and of course, research.

It’s hard, exhausting work and we have achieved so much only because of YOUR help and support.  YOU saved a record-breaking number of lives.

BUT… compared with singletons, twins are still

  • Over 1.5 x more likely to end in a stillbirth
  • Over 3 x more likely to end with neonatal death

We want to save even more babies’ lives and believe further clinical research is critical. Research is now an integral part of what we do. Our partnership with the British Maternal and Fetal Medicine Society (BMFMS) is continuing.  We want to raise a minimum of £20,000 which they will match fundThis will pay for two more research bursaries.

 

Tamba WILL NOT STOP its pioneering clinical research programmes until we drive down twin stillbirths and neonatal deaths even further and the figures are at least the same as singletons.

We hope you feel the same and will continue to support us in our life-saving mission. 

In a nutshell, we think research totally rocks!  Tamba rocks! YOU rock!

 

YOUR support will be critical to saving even more babies lives. If you would like to help us rock the research and fundraise in any way, shape or form, please contact LucieWigley@tamba.org.uk

Please help us to rock the research by

  1. Donating
  2. Fundraising in any way, shape or form. 
  3. Spreading awareness by painting rocks and sharing on social media

 

TTTS Appeal Logo - Tamba's TTTS Appeal - Twin to Twin Transfusion Syndrome

Twin to Twin Transfusion Syndrome (TTTS) is a rare but life-threatening condition affecting identical twins who share a placenta (monochorionic).  It can also occur in triplet pregnancies which include monochorionic twins. One twin (the donor) transfuses blood to the other twin (the recipient).  If TTTS is left untreated 90% of babies will die, so if the condition is severe Newborn baby twin in Neonatal Unitenough families are referred to a special fetal centre for laser ablation and/or amniotic reduction. Even with treatment there is a 10-20% chance of the surviving babies having long term disabilities.  Until now there was no national database recording TTTS cases and too little research being conducted into the disease. 

That is why we have partnered with St. Georges hospital to set up a national registry of TTTS cases, their treatments and their outcomes. Crucially this will help to guide clinical practice and provide better patient care for those suffering from the disease. It will also provide data for future research and long term follow up of TTTS treatments and outcomes. 

We are delighted to announce that with all the fantastic support we have received in 2014/2015 we have managed to raise our £30,000 initial target to get the TTTS Registry up and running!  The Registry will be going live in October 2015 and any niggles worked on through the rest of the year. The TTTS registry will be a UK first and is the most practical way of driving improvements in the next few years and longer term.  

We are keeping the TTTS Appeal as an ongoing appeal because there will be continuous running costs associated with the registry and we need to appoint a research midwife to liaise with the hospital units to ensure the data is collected and entered correctly etc. We will also be extending the registry to cover other TTTS complications such as TAPS and TRAPS. So your continued fundraising is very much needed and greatly appreciated!

We want fewer TTTS Angels and more TTTS survivors.  If you would like to help by fundraising for this appeal please email shelleysmith@tamba.org.uk  If you would like to make an immediate donation please TEXT TTTS01 £5 to 70070 or visit https:// www.justgiving.com/TTTSAppeal 

Helping Hands Appeal  

Tamba’s Helping Hands project provides free, practical, qualified help in the home for families of multiples in crisis. The service is run in conjunction with Norland Agency. Norland Nannies and Maternity Nurses give up their time free of charge to help families when they are at their lowest. Although the Norland Nannies provide their services free of charge, Tamba covers the cost of their travel and living expenses while they are helping the families. Your donation, no matter how big or small, will make a difference.Quads - Quadruplet babies in their nappies lying on a bed together

In 2014 we launched an appeal to raise money for our Helping Hands fund to support a family that were struggling to cope with quads and an older daughter. One of the quads, Alfie, has severe cerebral palsy and was extremely poorly. This family were at breaking point and needed urgent help. Thanks to everybody’s help we were able to provide Alfie’s parents with the funds for a number of Norland Nannies to help care for the family during this emotional time. The parents, Rebecca and Barrie had this to say:

 ‘The Helping Hands appeal has been a lifeline for our family. Without the help of the volunteers we wouldn’t have been able to function properly as a family and we can’t thank them enough, and all the kind people who have donated to the appeal for Alfie. ‘Alfie is an amazing little boy and against all odds he has fought to be here with us. He is such a placid, beautiful little boy, and we don’t know what we would have done without him. We’re so blessed to have five beautiful children.’

We still need your help. When families come to us in dire circumstances we need to be able to react immediately. Please help families when they are at their most desperate by donating today. The more donations we receive, the more families we can help.





 

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